The Out with Cancer study is investigating LGBTQI+ experiences of cancer and cancer care, and of medical interventions to reduce cancer risk. Information from this study will be used to develop better information and support for LGBTQI+ people with cancer and their carers.
The study is being conducted by the Translational Health Research Institute (THRI), Western Sydney University, and is funded by the Australian Research Council in partnership with The Cancer Council NSW, Prostate Cancer Foundation of Australia, CanTeen, National LGBTI Health Alliance, ACON, and Breast Cancer Network Australia.
Why Out with Cancer needs your help
Previous research suggests LGBTQI+ communities experience a disproportionate cancer burden, and face unique psychosocial challenges, such as higher rates of cancer related distress and sexual concerns, lower levels of family support, difficulties in accessing general health care or cancer services, gaps in patient provider communication and lower satisfaction with cancer care.
Is this study suitable for you?
The Out with Cancer study wants to hear from:
- LGBTQI+ people diagnosed cancer (now or in the past), or who have had medical intervention to reduce a known or perceived cancer risk.
- Your partner(s), family members and friends who supported you, as well as LGBTQI+ people who have cared for someone with cancer.
LGBTQI+ includes people who are lesbian, gay, bisexual, transgender, queer, born with a variation in sex characteristics (intersex variation), and those who identify with other terms used in our communities (+).
What is required to take part?
Take the confidential online survey (20-45 minutes) with the option of a follow-up interview to discuss your experiences in more depth. You can also take part in a further photo interview, using photos taken by you.
In the survey and interview you will be asked about your experience of cancer or caring for a person with cancer, your wellbeing, social support, relationships, and experiences with the healthcare system. We will use this information to develop better information and support for LGBTQI+ people with cancer and their carers.
What are the possible benefits of taking part?
Through the study, the researchers hope to gain further knowledge and understanding of the experiences of LGBTQI+ people who have had cancer so that health professionals and services can provide better support in the future. However, the outcomes of the study may not directly benefit you.
You will receive a $30 voucher for each interview to acknowledge your time and contribution.
Is participation voluntary?
Participation is entirely voluntary. If you do take part, you can withdraw at any time without giving reason.
If you do withdraw, this will not impact any relationship you might have with Western Sydney University, or any other organisation involved in the research. Any information that you have supplied will not be used within the study and will destroyed unless you give written permission otherwise.
For more information and to get in contact with the study organisers, visit the Out with Cancer study website.
This is an Australian Research Council Linkage Grant funded project. This study has been approved by the Western Sydney University Human Research Ethics Committee. The Approval number is H12664.